Living with Snyder-Robinson Syndrome - We Are Stars *

Born with an ultra rare genetic condition called Snyder-Robinson Syndrome (SRS), Connor's body does not produce an enzyme critical to many vital bodily functions. Connor has spent his whole life in multiple therapies that help address the impact of SRS. He lives with many developmental delays, hypotonia, a seizure disorder, and severe osteoporosis (brittle bones). Through all of this, Connor has never lost his determination, his infectious laugh, or his love of life. Shine on, SRS stars!

Created by Katia.